Well it has been quite a day since I opened my eyes this morning. It started with my daughter who is 8 years old and suffers from a rare disease called Costello Syndrome not wanting to go swimming. This syndrome affects the quality of her life pretty hugely and has since she was born. She was on tube feeds for many many years and it took us over a year to finally wean her off from it! Anyway, she's a wonderful little child and honestly is the most polite and well mannered little lady. She was never a rule breaker but maybe because she broke the norms when she was a tiny little one. I mean, no parent anticipates they'll be feeding their baby via a tube and on special paediatric feeds to up her calories! Anyhow, she was a well behaved child.
Of course she usually loves swimming but from what I know, it isn't the fun splashy lessons she used to have and of course in order to teach her, they have got her doing lots of exercises which Aleena isn't liking at the moment. It took me a long hour to pacify her and she was eventually happy to go to school all happy and ready to get into the pool.
Then my lovely nearly 3 year old son decided today was the day he will cry until I gave up or he gave in. Since 8.30am he has been crying to go and play outside in the garden when it has been raining profusely. I haven't been well and so I wasn't planning to live the moment and go in the garden drenching myself in rain and definitely not so early in the morning. My son usually gives in after half an hour but today this tantrum lasted the whole morning into the afternoon. I had bought him a pair of sandals/shoes to wear outside in the garden when playing and so since yesterday he has been walking in them shoes inside and really wanted to wear them outside.
I sometimes physically do not have the energy to discipline him the way I probably would have before falling ill. Firstly, I find it very hard to be firm with him and carry a nearly 3 year old to a naughty corner which he really doesn't understand or if he does, he pretends he doesn't. I just let him cry and hope that he will soon get himself together which he does eventually. However nowadays he has grown quite a stubborn personality and at times I find myself giving into his demands because I'm tired. Sometimes managing a breakfast without a million hurdles is impossible! I mean for any mother it is impossible anyway and throw into that a mother who has to deal with a child with special needs, a terrible two toddler and then a mother who has her good days with health and then the bad days. Of course, my husband helps out a lot and he is finding our little rebel of a toddler difficult these days. We are either hiding in the kitchen trying to get a hot cup of coffee with some snacks or we are dealing with this little terror dangling on us or pulling and pushing us. Breakfast is a must for me though as I have medications to take early in the morning without fail and then in the evening. So I have to stick to a good routine and make sure to take my anti rejection medications on time and same time everyday.
Of course he doesn't always behave like that but today was one of those days we had where everything was upsetting him. He was a happy bunny eventually when it got sunny and he was was able to wear his 'pider man' sandals outside!
On the other hand my daughter came back from school asking me 'can I go swimming tomorrow?'. I mean it took me an hour to make her understand how important it was she took part in her lessons and stop her from crying only for her to want to go swimming again tomorrow. What do I say? I have two entertaining souls in my life who make sure that I am never bored! Ha!
So this was my day! Full of humorous moments and me trying to get to my medication on time. It is hard being a mother again after a transplant. Having to regain the physical stamina and mental capacity to help two little people develop and reach their full abilities. I hope I am doing a good job and I hope my children know that I have my struggles but everyday I am trying to be the mother I once was.
Here's hoping to a peaceful day tomorrow. I am planning to start toilet training my son in the next week or so, so I'll be writing up posts on my experience with this little man.
Another little news. I will be coming on BBC Radio 4 on Monday 18th April between 10-11am in the women's hour to talk about my transplant. So tune in and listen out for me!
Of course she usually loves swimming but from what I know, it isn't the fun splashy lessons she used to have and of course in order to teach her, they have got her doing lots of exercises which Aleena isn't liking at the moment. It took me a long hour to pacify her and she was eventually happy to go to school all happy and ready to get into the pool.
Then my lovely nearly 3 year old son decided today was the day he will cry until I gave up or he gave in. Since 8.30am he has been crying to go and play outside in the garden when it has been raining profusely. I haven't been well and so I wasn't planning to live the moment and go in the garden drenching myself in rain and definitely not so early in the morning. My son usually gives in after half an hour but today this tantrum lasted the whole morning into the afternoon. I had bought him a pair of sandals/shoes to wear outside in the garden when playing and so since yesterday he has been walking in them shoes inside and really wanted to wear them outside.
I sometimes physically do not have the energy to discipline him the way I probably would have before falling ill. Firstly, I find it very hard to be firm with him and carry a nearly 3 year old to a naughty corner which he really doesn't understand or if he does, he pretends he doesn't. I just let him cry and hope that he will soon get himself together which he does eventually. However nowadays he has grown quite a stubborn personality and at times I find myself giving into his demands because I'm tired. Sometimes managing a breakfast without a million hurdles is impossible! I mean for any mother it is impossible anyway and throw into that a mother who has to deal with a child with special needs, a terrible two toddler and then a mother who has her good days with health and then the bad days. Of course, my husband helps out a lot and he is finding our little rebel of a toddler difficult these days. We are either hiding in the kitchen trying to get a hot cup of coffee with some snacks or we are dealing with this little terror dangling on us or pulling and pushing us. Breakfast is a must for me though as I have medications to take early in the morning without fail and then in the evening. So I have to stick to a good routine and make sure to take my anti rejection medications on time and same time everyday.
Of course he doesn't always behave like that but today was one of those days we had where everything was upsetting him. He was a happy bunny eventually when it got sunny and he was was able to wear his 'pider man' sandals outside!
On the other hand my daughter came back from school asking me 'can I go swimming tomorrow?'. I mean it took me an hour to make her understand how important it was she took part in her lessons and stop her from crying only for her to want to go swimming again tomorrow. What do I say? I have two entertaining souls in my life who make sure that I am never bored! Ha!
So this was my day! Full of humorous moments and me trying to get to my medication on time. It is hard being a mother again after a transplant. Having to regain the physical stamina and mental capacity to help two little people develop and reach their full abilities. I hope I am doing a good job and I hope my children know that I have my struggles but everyday I am trying to be the mother I once was.
Here's hoping to a peaceful day tomorrow. I am planning to start toilet training my son in the next week or so, so I'll be writing up posts on my experience with this little man.
Another little news. I will be coming on BBC Radio 4 on Monday 18th April between 10-11am in the women's hour to talk about my transplant. So tune in and listen out for me!
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| In his spiderman shoes! |
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